Free Aniridia and WAGR Syndrome A Guide for Patients and Their Families

[Free Download.zg5V] Aniridia and WAGR Syndrome A Guide for Patients and Their Families

[Free Download.zg5V] Aniridia and WAGR Syndrome A Guide for Patients and Their Families

You can download in the form of an ebook: pdf, kindle ebook, ms word here and more softfile type. [Free Download.zg5V] Aniridia and WAGR Syndrome A Guide for Patients and Their Families, this is a great books that I think are not only fun to read but also very educational.
Book Details :
Published on: 2010-04-07
Released on: 2010-04-07
Original language:

Our hope is to enlighten and encourage those affected by aniridia and WAGR Syndrome by providing patient support and medical information. There is information to inform parents, teachers, doctors, employers, and the public about aniridia and what it is like to live with it. Several renowned doctors contribute medical chapters. Personal experiences from individuals with aniridia and parents with children with aniridia provide encouragement. Contact information for Aniridia Foundation International (AFI) is included.When a child is born without a complete iris, it is usually a symptom of a broader condition. Known as aniridia, this condition can also be a sign other parts of the eye are underdeveloped as well. Moreover, recent research shows that the gene involved can also affect the kidneys, pancreas and forebrain, so aniridia can coincide with a range of symptoms known as WAGR syndrome. Until recently, however, there was very little information available on aniridia and WAGR Syndrome. Even now, not all of the available information is current or correct, so that when a child is diagnosed with aniridia, the parents often find or are given information that is confusing and even frightening.We created this book to help those families see that they are not alone, and there are a lot of answers and a great deal of hope. It contains information about aniridia and WAGR Syndrome for parents, other family members, friends, teachers, doctors, and employers. We have been very fortunate to have several renowned doctors contribute current and comprehensive medical information that will help to provide concrete answers to basic questions and demystify these conditions. The book has many personal stories from individuals and parents that will help to give a more complete picture of what it is like to live with aniridia and WAGR Syndrome and provide encouragement and comfort. It also contains information about where to go for more answers and support, including the Aniridia Foundation International (AFI), http://www.aniridia.net, a non-profit organization created by one of the authors, Jill Nerby.We hope that you will read this book and join us in creating a better future for those with aniridia and WAGR Syndrome. Home - NORD (National Organization for Rare Disorders) Menu. for Patients and Families. Information & Resources. Rare Disease Information; Resources & FAQs; State Health Insurance Information; Information for Your Doctor Homo sapiens diseases - Urinary apparatus - UFRGS allergic cystitis : cystitis resulting from some unusual hypersensitivity characterized by a large number of mononuclear leukocytes and eosinophils in the bladder ... Childhood obesity - ScienceDirect Epidemiology. 8 years have passed since the last Seminar on childhood obesity in The Lancet. 1 Our goal is to review new information and outline some of the remaining ... OMIM Entry - * 607108 - PAIRED BOX GENE 6; PAX6 Hanson and Van Heyningen (1995) reviewed the work on PAX6 in man mouse and Drosophila. A chronology was provided beginning with identification of the 'paired' gene ... Wilms Tumor and Other Childhood Kidney Tumors Treatment ... There are many types of childhood kidney tumors. Wilms Tumor. In Wilms tumor one or more tumors may be found in one or both kidneys. Wilms tumor may spread to the ... Charity List - JustGiving Charity List. A list of charities that currently use JustGiving to grow the world of giving and help change lives. Wilms Tumor and Other Childhood Kidney Tumors Treatment ... The constellation of WAGR syndrome occurs in association with an interstitial deletion on chromosome 11 (del(11p13)) (prevalence is about 0.4% of children with Wilms ...
Download Ebook Pursuit of Passionate Purpose Success Strategies for a Rewarding Personal and B